• The SMAllest act of love makes the biggest difference. Join us!

    SMALL Wheelathon is a charity ride for SMA (Spinal muscular Atrophy). All are welcome to participate. Just walk, run or cycle—it's up to you. Together, let's drive the change needed for a brighter future. See you there!

    Sunday, 2 December, 2018

    Plaza Arkadia, Desa ParkCity

    7.30am - 10.00am

    RM50/pax (adult/child)

    Register before 15 October 2018

  • Letter To Minister Of Health: “SMA – Making HOPE real for the families”

    On Dec 23, 2016, the US Food and Drug Administration approved the first-ever drug therapy for spinal muscular atrophy or SMA, called Spinraza (Nusinersen). Since then, the SMA community in Malaysia has watched as country after country approves the use of this drug, bringing heartening joy to the SMA families there.

  • Do you know? 1 in 50 carry the defective SMA gene.

    SMA is a disease that robs people of physical strength by affecting the motor nerve cells in the spinal cord, taking away the ability to walk, eat, or breathe. It is the number one genetic cause of death for infants.

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EVENTS

02 Dec 2018
Desa ParkCity
WeCareJourney is bringing SMALL WHEELATHON II to you and your family & friends, on Sunday 2 Dec 2018, in conjunction to International Day of Person with Disabilities. Come join us!
26 Jan 2018
Kidzania, KL
Are you a family with children with disabilities? Would you like to visit Kidzania KL on Friday 26 Jan 2018 from 9.30am to 1pm?
21 Jan 2018
English Champ, PJ
A sharing session facilitated by Ms Sook Yee, a mother of a child with a life limiting genetic disorder (SMA)
31 Dec 2017
Desa ParkCity
Come join us at “SMAll Wheelathon Charity Ride" ♿🚴🏃🛴🏂 to make a BIG difference.

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