Stories
02 Jul 2018
We are encouraged that rare diseases are included in “Promise 9: Improve access to and quality of health services”, paving the way towards full equal opportunities for access to healthcare for families with SMA and rare diseases. We look forward to the Harapan government committing towards ‘Making Our Hope Real’
16 Oct 2017
After having a battery of tests done, the doctor finally breaks the news. Your child/family member has Spinal Muscular Atrophy.
10 Apr 2018
The siblings of a rare disease patients ( here are SMA patients) are extraordinary. They are the "silent heroes" who are the true fighters" in this journey.
29 Oct 2017
Branden Lim was testing out a prototype wheelchair when Malaysiakini arrived at his home in Damansara Jaya for an interview.
28 Feb 2018
February 28th is Rare Disease Day and it aims to raise awareness with policy makers and the public of rare diseases and their impact on the lives of patients, the families and caregivers.
18 Mar 2018
Yao Wen is a happy, positive and brilliant boy. However, he is not able to go to school in the last few years.
08 Mar 2018
WeCareJourney celebrates IWD by asking these 4 ladies who are successful in their own field of work, despite their challenges and medical condition, Spinal Muscular Atrophy, WHAT DOES IWD MEAN TO THEM?
20 Apr 2018
He faces difficult challenges, but his attitude makes growing up with Branden and SMA meaningful, inspiring and happy.

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