“Branden quietly came into this world. His cry was silent, and he was rushed to the intensive care unit to treat pneumonia and fluid in his lungs. He
recovered after a week, but the joy of having him home was soon tested by constant worries over his general weakness.
Upon celebrating Branden’s first birthday, we decided to have him undergo a genetic test.
As parents, we shared in Branden’s older brother Jaden’s excitement about having a younger brother. They would be able to run and play together, to make friends, go to school and learn and discover the world!
These hopes were shattered that day the genetic test confirmed that Branden had SMA.
We were told it would be a hurdle just to get him to his next birthday. The hopes we’d had were crushed. There are no words to describe the trauma, pain, shock and sorrow we felt upon learning his diagnosis.
Why him? Why us? Why are we at fault? What’s going to happen?
We’d felt real loss, but every new day still dawned. We begin to get a change of perspective. Instead of looking down, we started looking up.
We started to accept what we can’t change, and we focussed on what we can do rather than what we can’t. We will accompany Branden on this journey.
He faces difficult challenges, but his wonderful attitude and strong spirit makes this journey a meaningful, inspiring and a joyful one!”